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Old 01-31-2014, 03:53 PM
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ker0pi ker0pi is offline
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Join Date: May 2013
Location: California Coast
Posts: 67
10 yr Member
ker0pi ker0pi is offline
Junior Member
ker0pi's Avatar
 
Join Date: May 2013
Location: California Coast
Posts: 67
10 yr Member
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Met my new neuro today. I had my concerns, I know a few of her patients and they are not happy with her. We got along just fine. Had her joking and laughing and she does a very good job of monitoring her ms patients. She told me how she liked to do the blood test monitoring. And is a big advocate of Vitamin D therapy.

We looked at my follow up MRI and I now have over 20 lesions, compared to the 9 I had 14 months ago. I have spinal atrophy in my neck, I was not surprised. She is ordering a full spinal MRI to have a base because she strongly suspects I have spinal atrophy in my back as well.

She's referring me to PT again for assistive device assessment, OT to address my hands and arms issues and I decided on Copaxone to try as my DM med. I had already decided I did not want to do Tysabri, not with such a young child. She said that was good because I can't do it. I have extremely high levels on the anti body in my blood. Might explain why I really really felt that was the worst therapy for me.

I'm feeling more positive today. I told her about my early experiences as a child and how I was during pregnancy and she agreed I had classic MS progression and have been unknowingly suffering from this disease for a long time.

She answered all my questions and seemed very knowledgeable about all treatment options. I'm going forward feeling much more confident that I will be monitored and looked after thoroughly.
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"Nothing has changed, but everything is different" -Hubby's statement after I received diagnosis.

-DX RRMS 12/2013
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"Thanks for this!" says:
agate (01-31-2014), Erika (01-31-2014), Mariel (01-31-2014), SallyC (01-31-2014)