Met my new neuro today. I had my concerns, I know a few of her patients and they are not happy with her. We got along just fine. Had her joking and laughing and she does a very good job of monitoring her ms patients. She told me how she liked to do the blood test monitoring. And is a big advocate of Vitamin D therapy.
We looked at my follow up MRI and I now have over 20 lesions, compared to the 9 I had 14 months ago. I have spinal atrophy in my neck, I was not surprised. She is ordering a full spinal MRI to have a base because she strongly suspects I have spinal atrophy in my back as well.
She's referring me to PT again for assistive device assessment, OT to address my hands and arms issues and I decided on Copaxone to try as my DM med. I had already decided I did not want to do Tysabri, not with such a young child. She said that was good because I can't do it. I have extremely high levels on the anti body in my blood. Might explain why I really really felt that was the worst therapy for me.
I'm feeling more positive today. I told her about my early experiences as a child and how I was during pregnancy and she agreed I had classic MS progression and have been unknowingly suffering from this disease for a long time.
She answered all my questions and seemed very knowledgeable about all treatment options. I'm going forward feeling much more confident that I will be monitored and looked after thoroughly.