Originally Posted by ~Sage~

Yes, yes yes! RSD can go into remission so do not lose hope!

Since I am not a doc, I'll tell you about my trip down RSD lane.

I got RSD from a stroke (brain trauma). I had about 2 months in hospital between acute care and rehab. For many weeks I had complete right- side paralysis. When I got feeling back, it was like a million scalpels slicing me up. The nurses just smiled.

From there, home where I lived alone, no family near, most past friends stayed away. Air (ceiling fan) going across my skin was excruciatingly painful. Skin on right hand and foot was bright red, shiny, swollen.

Two years after stroke and because of contracture of toes making walking feel as if I was walking on abscessed teeth, all the joints were sawn off and steel pins inserted in my toes for 11 weeks.

This is all back in the early 90s. I had no medical coverage for a few years and was not really diagnosed for four years, at which point I was put on Neurontin.

Intractable pain til from mid 90s til about 2008. I was eventually diagnosed as having RSD by five doctors. I totally agree with everyone here who is out of reach of knowledgeable doctors!

I got the RSD into remission, even though everything I had researched about RSD indicated that was not possible.

Do not give up! I used the most conventional treatment I could, refusing any surgical treatment like implanting of pumps. Personally, I believe that going the distance some doctors wanted may have killed any possible remission in the future.

Finally, when I felt mentally ready in case it was a mistake, I weaned myself gradually off the Neurontin! And out of the active RSD! Work towards that moment in your life! I know it may not be a forever state but it's bee about six years now and who wouldn't take that!