Quote:
Originally Posted by Porkette
Hi Matt,
Do you drink anything with caffeine or eat any chocolates anytime past 7 pm if you do this may be causing more electrical activity in your brain. As I watched the video my husband has told me that I do this same thing during a myoclonic sz. meaning having the sz. when I go to sleep or when I first get up in the morning. Once I started taking vimpat this type of sz. stopped. Cut back on starch food and carbs and see if this will help you out. I wish you the best of luck and May God Bless You!
Sue
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I actually used to (before symptoms started) drank a ton of caffeine, however, I have had one caffeinated soda in the last month, and try to limit chocolate, teas, etc. because I was hopeful that the problem was just caffeine related. I also have been taking calcium citrate, magnesium citrate, DHA,omega 3, and L-thyine to try to curb the symptoms, but no luck. Also, have had blood work for vitamin deficiency and thyroid issues that both came back as normal.
So your husband does the same thing? This is interesting, how did he get diagnosed? Has he found anything that helps him? In my research I have found a weird thing called hygonic/hypnic jerks - everyone has it to some degree or another, it's that feeling of falling when you go to sleep but in some cases it can be severe. It happens when your brain misfires during that weird time between sleepiness and wakefulness, which I believe is known something like the hygognic state. I wonder if that is what your husband is experiencing.
In any case I am torn between finding a treatment for the symptoms/finding the underlying cause or simply working around the problem but I think I may give in and try to be refered to a neuro soon. I have already spent close to $3000 out of pocket between sleep studies and doctor's appointments and don't entirely want to spend more, but don't know the other options
Thank you SO SO SO much again, and if I find anything out that may help your husband I'll let you know
Matt