Quote:
Originally Posted by Panorama
I've seen negative antibody tests in MG patients several times, twice this week alone in old House episodes.
You may need to site a more authoritative source than House episodes to kick-start your neurologist. Take a look at section 2.7, Diagnostic Procedures in MG, on page 14 of the MG Manual:
"The diagnosis is frequently delayed months or even years. The usual distribution and fluctuating symptoms often suggest psychiatric disease." I read in the forum this week that one poor soul was prescribed Prozac. She was not presenting strong enough symptoms during doctor visits for him to see there was a physical problem. Being a master diagnostician, the doctor thought his patient was crazy and he prescribed Prozac. Later she saw a neurologist who diagnosed MG right away. Although they might argue the point, doctors do not know every thing.
Get a copy of the free MG Manual:
Myasthenia Gravis: A Manual for the Health Care Provider
http://www.myasthenia.org/LinkClick....w%3d&tabid=125
Download it onto a thumb drive. Go to Kinko's and have it printed and bound. It will be the best $10 bucks you ever spent.
The Diagnostic Procedures in MG section includes:
- Edrophonim Chloride Test
- Auto-Antibodies in MG
- Elecrodiagnostic Testing in MG
- Ocular Cooling
- Other Studies
Push your doctors to explore the other ways to determine if a patient has MG. BTW once doctors know you know what they should know (but often don't), they will afford you a bit more respect.
There are a lot of big words in the MG manual. There is a medical dictionary linked at the top, right of the most forum pages:
http://www.nlm.nih.gov/medlineplus/mplusdictionary.html
Simply type the word into the medical dictionary and get an answer. It makes thing so much easier.
I would also print the few pages on Diagnostic Procedures in MG and give them to your doctors. MG strikes only 1 in 10,000, making it hard to get a diagnosis under the best of circumstances. Many primary care doctors may never see a case in their careers. Not having a positive blood test makes it even harder once they suspect MG.
Take care,
-Mark-
P.S.: sham0968 - Just sent you a Private Message.
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I had blood work neg and emg on one leg negative but when the test was done I had rested all night and my leg was not weak at time