View Single Post
Old 02-02-2014, 01:06 PM
Hana Hana is offline
Junior Member
 
Join Date: Apr 2013
Location: W Central Coast
Posts: 96
10 yr Member
Hana Hana is offline
Junior Member
 
Join Date: Apr 2013
Location: W Central Coast
Posts: 96
10 yr Member
Default SCS advice for multiple pains? Anyone?

I need either a stimulator or pump and I am afraid of them both. I only have my own council so please chime in if you like!

I have different types if neuropathic pain in different areas.
I have sciatica and RSD in different spots..
RSD is primarily my upper body pain.

Sciatica and spinal related pain is the other most major pain, and most is in the lower half. I'm at the limit with meds and my ability to function. I have to do something and I am nervous. Until a few months ago I was able to get enough rest that my legs would work and I wouldn't have that level 10+++ pain until about 2.
In my upper extremeties I have RSD as well as spinal cord related neuropathy. The RSD manifests as fingers boiling hot and swollen or frozen blue and swollen, along with the pain associated. Otherwise, My hand goes numb if I lie of my side... I drop things...

In the lower I have excruciating pain from sciatica and pain from different spots along my lumbar spine that impinge my nerves. L2-S1 Standing becomes impossible. I cannot find a comfy place to sit..and now I take bed pillows to sit on and lie against. Its not possible to roll over in bed.
I tried to fit my day into that amount of time 7AM to 2 PM. Now I wake up and my legs are aching ,and the stabbing begins.
I am getting anxious because my hands do not work well from the RSD, and I cannot prepare a meal,...well. I am sad to say I am pretty well on my own at home, and I am at the limit of my abilities.

I go back to the doc on friday, a 2 hour drive from here. I dread it only because of the time having to spend sitting and standing without ability to move my body to get comfortable.

Either I go with 2 stimulators or a combo of pump and stimulator? I'm not wild about infection risks.

Pain has driven my family away. They cannot tolerate seeing me in it, and can't be with me, so I am grateful that you are here to relate to.
Pain is pain. It is not who we are. It is a gift to experience pain because of the ability it has given me to appreciate you and the gift that life is. Never waste a moment....
Hana is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (02-18-2014), Hannabananna (02-03-2014), Mark56 (02-09-2014), PamelaJune (02-02-2014), Rrae (02-04-2014), St George 2013 (02-21-2014)