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Old 02-03-2014, 05:19 AM
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PamelaJune PamelaJune is offline
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Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Heart Oh my goodness

Well I'm reading these posts and now I'm wondering. I was about to go onto one of the other sites and ask if they thought my taking of increased OxyContin as demanded by my PM and NS last week could cause me gallbladder problems.

Then I read these and I started thinking.

I had polycystic ovarian disease syndrome and after 11 emergency ops throughout the 80's yet another cyst imploded this time directly into the ovary and blew my right ovary to smithereens, they had no choice but to remove it doing a partial oopherectomy, taking the right Fallopian tube as well in 1989. The remaining ovary developed another cyst in 1993 and damaged the remaining Fallopian tube so they had to remove the left Fallopian tube leaving the left ovary intact.

I developed a tumour in 2001 and required a total hysterectomy removing the remaining ovary, uterus and cervix. I nearly died on the operating table the first time she operated, she botched the surgery and nicked the bowel, but didn't own up to it. Subsequently I developed an infected hematoma followed by peritonitis, regular temps of over 103 extremely ill, rushed in and out of hospital and even her anaesthetist came to me on the ward and said get out of here as soon as you can. Then I developed MRSA, I haemorrhaged twice and the ultimate kicker a fistula between the bowel and the vagina cavity with faecal matter oozing from there. That gave me third degree burns from the faecal acid, I finally had to have 12 inches of my bowel removed.

Blow me the ovarian tissue grew back again the following year and I had another gynea go in and attempt to remove it a 2nd time in 2002 and by 2003 I developed a mass that blocked the right kidney, so they put in a stent in the kidney tract until they could remove the mass. That year I required further surgery to remove it. After that he put in a zoladex implant and nuked any possible tissue. End result, I now have a dodgy bowel and since 2005 have suffered 8 extremely dangerous bowel obstructions. The specialist has said if I have any more intestinal injury that requires surgery I run the risk of losing my bowel completely, it shutting down and face high probability of death. I work hard to manage my bowel obstructions taking movicol sachets daily.

In 2012 I had a grand mal seizure attributed to acute headache pain, and during the seizure fractured 3 thoracic vertebrae, 2 ribs and had an s1 stress fracture.

So now I'm here in 2014, I've got failed back surgery syndrome, from a double spinal fusion in 2013 to L4/5 and S1 and suffering extreme and constant chronic pain in my lumbar, thoracic and cervical so after Rhyzotomy difficulties that caused the seizure in 2012 we opted to have had a SCS implant put in December 2013. Once again they again had trouble and could get only one lead in so it's not working and now I'm waiting for a paddle or yet another spinal fusion to L2/3. For sure they intend to do another nerve block next week.

But my big question, is do you think I've got CRPS, the Rhyzotomy to the thoracic region in 2012 left me unable to wear clothes on my back for months as the burning pain was excruciating, my pain seems to be spreading and I think I'm at the end of my tether. I told my husband the other day I had this strange pain to just below my right rib cage and it's getting worse, I told him today and I fear we are in for another round of hospital merry go round. I wrote my PM this morning telling him the nerve block he did on two weeks ago gave me relief to my left hip for 5 days but the pain has returned. I want them to either fuse the L2/3'or put the damn boston paddle in and remove the once lead as it's not working but when I had the SCS trial I'm sure I had relief.

At this stage I think I'm cracking up and I'm losing my identity, my life revolves around pain, I'm a prisoner in my own home and I'm over it. I've been doing 30 to 45 min walking exercise 4 times this week, first time in ages but it's caused me to set back. I can't test if the one leads working if I don't do anything can I.

Anyhow, now I have this gallbladder pain or maybe it's liver. I'm just so frustrated I'm going from bad to worse by the week. The left hip pain has returned and the right hip pain, thoracic pain, cervical pain and left arm/ hand pain has remained unchanged. The increased meds helped but I fear another bowel obstruction is around the corner.

Any suggestions?
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