Thanks for all your thoughts and concern. We've already seen multiple docs, gone to Pittsurgh, gone through the whole schooling routine, have a 504, homebound that delivers work, but the problem is getting behind in the normal school work. Online schooling is not good, pretty outdated tech and materials, did it last year. Trying to work it out so that she starts going to 1 or 2 classes and works her way up to a full day. We've been told by a couple docs not to bring up the pain, she has to learn to put it out of her mind. She has pain in her back, internals, hands arms, legs. The tears come from the pain.

Really just wanting to get the experiences and thoughts from someone who has lived with amplified pain, what you suggest as to how much we push her to go to school. I know that everyone is different, but we have no way of comprehending what she is feeling.

She says she not able to go to school for more than one period. When she does something outside of the house she generally needs to spend the next day in bed dealing with the pain. But then everything we've read says to stay active, even with the extreme pain and we have to help her to live with the pain and live a life, as much as possible.

Next step may be the Mayo, anyone have experience with it?