Buckhorn, I completely agree with catra...and as I said in my earlier post, your daughter needs to find her own levels of what she can deal with now. No one can set that for her. She's missing out on loads anyway, no matter how hard you try, she can't do/achieve everything (social and schoolwork) a 'normal' child can. Schoolwork is so important, but there is some good online stuff now - I'm sure your local educational board or her school should be able to recommend some sites.

What is vital, is that your family does everything they can to help her to keep contact with her friends from school and in the neighbourhood. We have all lost friends because being in pain all the time makes socialising as before so hard, and impossible in lots of instances. She has more chance of getting out and about if she has some incentive, for instance going to a friend's birthday, or into town to shop. Friendships can fall apart very very quickly, and even the best ones can take some work to keep things going when one person's circumstances change so much... If she becomes isolated from the world she won't want to go out, and then your world shrinks very fast. It's something we have all fought against.

You are doing such an amazing thing in reaching out to find answers for our family They are lucky to have you looking out for them. Good luck. Tell your daughter she isn't alone with this, and there is always a way through. I hope she is doing ok today.

Bram.