My physiatrist doesn't have much more to offer me... all the meds we've tried other than topamax have failed. (Various anti depressants, beta blockers, maybe others' I can't remember right now.)

For now we'll continue on with the once a week physiotherapy to keep working to try to improve the gait and balance issues... we were previously doing twice a week, but found that twice a week was not leaving enough recovery time between sessions, so we cut it back.

He's left me with some Ritalin that I can experiment with for the fatigue if I want and try to balance that with pacing strategies. I've not yet tried it. He gave me the script around the time my head pain went up and then I didn't try it as I didn't want to be tempted to over do it when my pain was already so high.

He's suggested I contact the opticalm.ca people to see about getting tinted lenses for visual issues.

My neurologist appointment is in July and then there should be more things to try... I know this particular neurologist does Botox for headaches and stuff and my physiatrist thinks I'm probably a likely candidate, so maybe that will be an option at that point.

Right now, when its currently snowing yet again and there's several feet of snow outside, its really hard to think about holding on until July for more options. Especially since I've already been holding on for 2 years now.

Kinda disheartening to feel like you just have to hold on indefinitely, with this level of pain, with no relief.

Esthersdoll, I have often wondered about a spinal tap... that would be something the neurologist would have to address.... in july.

I guess we just keep moving forward. That's what we do. Not like there's other options. But right now, this sucks.
Starr