Hello Danny,

Sorry to hear about your troubles. I've just recently got diagnosed myself and going through treatment now. The burning pain is usually nerve pain, so if you do have TOS and the nerves are compressed that would def cause that. Irritated nerves also cause swelling and all kinds of weird sensations in the arms/hands.

I was also having problems with my leg due to muscle imbalances. Once the upper body goes out of whack, the rest just follows. If your neck muscles are tights, they pull out all of your ribs, not just the first one and everything gets decentered, including muscles which start pulling on the legs too. You may also have shorter muscles in the thigh area because you have a desk job. If your posture is bad, the pec minor gets very tight, pulls your shoulders forward which makes the trap muscles very elongated and weak. That is why even if you try to correct your posture, you can't just yet because the back muscles are weak/inactive and can't support you. The pec minor needs to be stretched really good to stop pulling on the shoulders.

I hope I explained this well, this is my understanding of what is happening to TOS bodies.

You should definitely mention this to your dr and they would be able to assess if you have it or not, there are tests they can do.

If you do have it PT and chiro would be the first step. I have gotten great results going to PT twice a week plus chiro twice a week and doing home exercises 2-3 times a day. You need to find a good PT that knows about TOS.

Please do not lose hope, I was like a frozen chicken, almost completely immobile ( could not move neck, lift arm, frozen shoulders) and in just 3 weeks I am a different person.

Ask away, plenty of people here to help. There is also a group on Facebook.