Families, just like OP, don't get it. Period.

When I first moved back to Buffalo, my combo of RSD & Raynauds put me in such agony. My docs asked why I moved back from Florida. :roll eyes:

Anyway, I searched for a support group to see if there was one. I found the girl who had run it, but she shut it down. We did however have interesting conversations. When I asked her if there were any local docs who "knew" RSD, she said she drove to another city to see someone more knowledgable.

Maybe you could find a support group within a reasonable distance. At least you'd be talking with people who "get it". Other than that, come here or wherever you find people to talk with online.