Yes. And YOU have got to be your own best help. Some docs may even want to learn from you, others not.

I don't want to be any doc's experiment or lesson. Either do you. Narrow down and find the RSD/CPRS people in your general area. Talk with them and compare notes.

Research your issue, decide things based on what you learn until you find a doc who is thoroughly knowledgable.

Do not get any invasive treatments! That includes injections. Once done, those treatments cannot be undone.