Hi,
I know it's quite delayed response. I was dx was TOS in April 2013, in Toronto swell. There are a few specialists (one who deals with clinical treatment alone (in the Vascular Clinic - he only works part time - i think he's there once a week. Who were you referred to??? I had surgery May 2013 at Toronto General Hospital by Dr. De Perrot (Thoracic Surgery Clinic) - I might have some connections still and can give you the info, and if you give it to your dr he can refer it to him, I was able to get an appointment with him within a few weeks.
Let me know if you have been able to have any success!!!! let me know if I can help!!!!
Quote:
Originally Posted by sealeg
Hello fellow TOS sufferers:
I am new to the board. Was diagnosed in November of 2011, but really started showing symtoms in May of 2011 -- ended up waking up out of the blue one morning with a swollen right hand all the way up to my elbow. Within a couple days I was diagnosed at the hospital with a blood clot and the rest of the follow ups led me to my diagnosis several months later of venous thoracic outlet syndrome. Apparantly, there is only ONE specialist in Toronto who performs this surgery and he is currently transferring these skills to another surgeon (and will no longer be doing this type of surgery). As a result, I have been waiting and waiting and waiting....been told I need surgery, but STILL have yet to meet with the new surgeon who will be doing it. How frustrating! Anyone else from Toronto on this message board, or anyone else have similar experience?
Thanks everyone!
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