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Member
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Join Date: Oct 2012
Location: canada
Posts: 553
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Member
Join Date: Oct 2012
Location: canada
Posts: 553
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Sorry to hear you are suffering, and for so long! I am sure my exercise has changed forever. I don't lift weights anymore - hurts the brain and neck. Climbing stairs is a challenge - not for the heart but for the head. Very weird and sad. I was extremely active in sports and loved getting my heart rate up! Squash, cycling, cross-country skiing, etc.
I did go to Buffalo for an assessment, if that is what you were being referred to (University of Buffalo Sports Clinic). They told me that I was at the stage where exercise would not make my concussion worse...and exercising at a sub-optimal level would be beneficial. You can find their research online and in medical journals. Dr. Leddy is one of the researchers.
I wonder if it would be useful for you? Not sure.
Did you injure your neck as well? (Sorry if you have already written that!).
Out of curiosity (because so many of us have had such bad experiences with some doctors who don't have a clue, or are patently wrong about concussion, how do you find your colleagues? Do you share your insights with them? It is the kind of injury that one cannot imagine until it happens. So hard to describe to others.
Hope you keep healing.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).
Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!
Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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