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Old 02-07-2014, 08:37 AM
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Panorama Panorama is offline
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Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Panorama Panorama is offline
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Panorama's Avatar
 
Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Question Steroid Sparing Therapy

My neurologist has diagnosed 2 other MG patients, but treats 5 others who came to him already diagnosed. My 60 mg Prednisone tablets run out Wednesday, February 12th. I only have 6 days to resolve the issue.

This is my neurologist's tapering plan:

The Prednisone reduced from 60 mg on the following schedule:
  • 40 mg tablets for 30 days
  • 20 mg tablets for 30 days
  • 10 mg tablets for 30 days
  • 5 mg tablets for 30 days

Many though that this plan was too fast.

I was considering the following, 60 mg reduced to:
  • 50 mg tablets for 30 days
  • 40 mg tablets for 30 days
  • 30 mg tablets for 30 days
  • 20 mg tablets for 30 days
  • 10 mg tablets for 30 days
  • 5 mg tablets for 30 days

My neurologist also wanted to start any immunosuppressant late in the tapering process. I know from the warning of other in the forum, that it might take 6 months to more than a year for immunosuppressant to start working.

I favor cellcept now, but my neurologists refereed me to Stanford Hospital's MG group. They might have other immunosuppressant suggestions. It may take weeks or longer before I can see them, though.

When is the best time to begin cellcept? Right at the first Pred drop?

Why do you think my neurologist want to go so fast, without an early immunosuppressant, and with the goal of taking me off the Preds permanently?

-Mark-
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