Oh Alt what a crummy visit, no wonder you are disappointed. These doctors seem to forget that just living in pain is an exhausting thing, and finding the energy to have to fight for everything against people who think they know everything while knowing so little of what matters....is just too much at times.

I hope the thing with your toes settles, you don't need anything else to deal with Maybe try waking them up in the morning with a little general foot massage. Mine quite like that if I can't feel them like I should. I massage with a little monoi oil and then put on some warm socks and walk about for a few minutes. It seemed to help when things were going numb sometimes, and now I don't have to do it very often.

Take care of yourself and remember that we are right behind you, and that those medics are the sloppy ones, not you. It drives me mad when docs forget which meds I've tried or ask me to repeat basic stuff they should have in front of them. Wastes our precious and rare time with them. Hang on in there.

Bram