Hi. yep 12 years ago they called it mal de debarquement,
now i have gluten senstivety,
so i thought oh gluten ataxia,(not celiac)
now possible seizure,
but dr thinks ms,
so i'm sitting around waiting researching asking questions, to anyone who might have answers,
yes i've been dx svt.
yes i see aura and feel it too
visual probs
couldnt walk with out falling like on a rocking ship 24/7
so in another month or two i suppose i'll find out if i'm a nut or not.
but for now i'll just try to stay calm.
but after along time of researching to get the answers i need, (mostly by myself) i may add. it's hard to just leave it in the hands of the same people that have allowed me to go undiagnosed for 13 years now, if you know what i mean,
just had a reaction to valium, or was it just ictil fear??
only god knows and if he was sitting here id ask him but he's not so its up to me.
MRI on the 4th june , then off to a neuro after that , when they can fit me in for an eeg.
sick of feeling like i'm learching from one crisis to the next.
thanks so much jen Australia