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Old 02-08-2014, 05:21 PM
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neutro neutro is offline
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Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
neutro neutro is offline
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neutro's Avatar
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
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Hello Mark,
This is taken from a reference I indicated to you before:

Prednisone
Maintenance

Start taper after: 3 to 6 months; or clinical improvement begins
Taper slowly
Initially by 5 mg on alternate days q2 to 4 weeks until 50 mg and 10 mg
Then by 2.5 mg on alternate days q2 weeks to 50 mg and 0 mg
Then taper high day dose by 2.5 mg q 4 weeks
Minimum dosage is qod if possible.
MG will recur in virtually all patients if Prednisone is stopped without additional immunosuppression

Clinical improvement: looking at your food program, you still rely heavily on mixed food, which is indicative to me of severe chewing and swallowing problems, to-morrow I will try to dig out a scoring test for your physical capacities.
I never tapered more than 5 mg at each step which lasted at least 3 to 4 weeks and later on, never more than 10 % of the dosage.
After each step, I felt rather bad for about 10 days to 2 weeks, I guess that was the time necessary for the body to cope with the new dosage.
I started Cellcept at day one but it didnīt work for me and I stopped after 4 years...
Too rapid a taper will surely send you back to where you started...
Any news from Stanford hospital?
Maurice.
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