Hi guys! Great to be back. Ava is doing ok. Several SE episodes this past summer. Very YUCK! She does not have daily sz like many ... but those prolonged ones that she does have are horrible! She had a 24 hour aEEG which showed almost continuous activity in both awake and sleep hours. Again we were warned abut regression and that Ava eeds as many services as she can get.
She is titrating Lamictal and getting off Trileptal. Thank goodness.
She also began the Low Glycemic Index diet which I think is finally beginning to help her.
We switched neuros. We are now w/ Dr T at MGH and she is fanastic!

Finally got the AFo thing figured out. Turns out it was not fitted correctly and it was not alighned properly. Once we fixed it, she wars it all of the time now. Still, in general it is not the best brace, but we only have another month to go before we get he better once.

Hope everyone else is doing well.

Anyone know if all of the old posts are gone?