I've been there. Desensitization therapy was one of the best things for me...it got me able to wear regular clothes again. I'm still very sensitive...but can tolerate loose, soft tops now that I couldn't before. That can make all the difference when needing to leave the house during the winter.

I also make frequent use of heating patches, hand warmers, and toe warmers to keep me warm when I have to go outside...mostly because I can't layer up with as many layers as I used to...so using the heating patches is necessary when those temps get down below zero when I need to go outside (which I have to do to get to work).

I hated being trapped in the house (winter or summer) when I couldn't walk or stand at all. It was so frustrating feeling like I was trapped on my couch...so difficult to keep from losing my mind.