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Old 02-10-2014, 04:15 PM
LauraM's Avatar
LauraM LauraM is offline
Junior Member
 
Join Date: Feb 2014
Location: Pennsylvania
Posts: 91
10 yr Member
LauraM LauraM is offline
Junior Member
LauraM's Avatar
 
Join Date: Feb 2014
Location: Pennsylvania
Posts: 91
10 yr Member
Default Just wanted to introduce my self and my frustrations.

Hi All!,
I hit my head on my bathroom sink, the comical part I was reaching for some TP to change the roll. I also have Lupus and was having pain in my shoulders and it hit at just that moment and I let go of my old of the sink fell forward and hit my head above my left eye. It left an egg and made me instantly sick and dizzy.
To the ER I went with severe pain in my arms shoulders and head. Xrays and CT showed nothing and I was sent home with moderate concussion and told to follow up with my PC.

Four days later when I could barely walk she shent me for a MRI which also showed clear and refered me to my neurologist for a followup. Who medicated me, scheduled vestibular therapy a VNG and said come back in 4 months.

I had the VNG done, and it made me so sick I ended up in the hospital for a week on IV depakote and pain meds.

My symptoms were to bad to do the therapy and she suggested that I have my PC refer me to the concussion clinic through UPMC. I was there in a matter of days. I was tested and refered to a doctor for eye therapy, back to vestibular therapy and to another doctor Medicinal rehab.

Now a year later I can walk without help even sometimes go to the store.
I was allowed to drive but only short distances a few months ago.
I still spend probably 2 or 3 days a week in bed.
I dont sleep at night
and I was just sent to our Eye and Ear hospital to see a specialist, he is a neurologist that specializes also in Otolaryngology. After a whole battery of testing that made me very sick all over again. He diagnosed me as having a bad balance sensor in my left ear. One of the falls damaged it and it will probably never heal. Now it is a waiting game to see when if ever my brain learns to let me function normally again.

My Concussion specialist said she sees this happen generaly in about a year...hahah I am past that. She also said my Lupus could be complicating the whole process and I have to made any "goals" at the normal pace. So she is not sure.

In the mean time I am sure glad to have found you all, because I am sure getting depressed and losing hope that I will ever run and play with my grand children again, go back to work, watch an air show or find a way to have fun. I am not a sit still kind of person, this is KILLING me.

I am on Vivactal during the day and Topamax at night for the headaches and that has helped a lot but it has never taken it completely away. I have not had a day free of a head ache in over a year.
I am now on Klonapin for the dizziness just a very small dose, but it is not yet helping. I am still recovering from the tests, the VNG put me in the hospital the first time, this time I am surprised the spinning chair they stuck me in did not make my head explode.

I pick and choose what I do each day and rate things as what is most important to get done and get those done first. If I push too hard I spen at least the next day in bed, sometimes two or three.

I am open to hearing how the rest of you manage to get through it and still get things done. How to learn to have fun and live life again. Right now my only "fun" is listening to audio books. I miss my old life.
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