Quote:
Originally Posted by Stellatum
This is a book by a woman who was eventually diagnosed with an atypical form of myasthenia gravis, after years of being told her illness was psychosomatic. It was so severe that she became a quadriplegic, and actively pursued euthanasia. Her book is subtitled "A Journey into Uncertainty and Prejudice in Medical Diagnosis." http://www.cornellpress.cornell.edu/...taf?ti_id=6014
I hope this doesn't discourage anyone, but I post it here because I know it will be of interest. Also, I really do think that books like this are heralds of change in the medical system. The success of this book at least means that people are willing to listen.
My thoughts are with those of you who are still fighting for a diagnosis. Don't give up.
Abby |
I am glad that you shared this. I have been always a happy person that loves life even when things are not going right and I have always been physical but I know when something different is going on in my body and there is no way I am causing it. I hate not being in control of my own life. So I can really relate with this book even though her symptoms are worse than mine. I can not imagine someone in that shape being told it is in your head. That would send someone in depression.