I have to say that when I was only a caregiver for a child with TN, I had no clue what to do. I just gave the love I could and hoped for the best. The biggest challege I met was a child who tried to use the pain for her own purposes. After these last couples of months with me haveing the pain, I have discovered she deserved to be babied. She didnt want anyone around and yet you dont want to be alone. It is a hard road to travel but now I understand in a way I never did before. I know this sounds nuts but i am glad I have TN. If for no other reason than to understand my daughter. It has also put other pain in perspective. I could go on forever like this I think. It stinks to have TN. I cant use the air conditioner in the car, eat anything horriblely cold, etc. But I can take up my little girl into my arms hold her and say, " I understand sweetie" What more could I ask for?

Crystalina