We've been dealing with PD or MSA or who knows what kind of pyramidal disorder for about a year. Lack of balance is the worst. Lots of doctors visits, no real answers. Bottom line is you can really help those neurotransmitter connections by adding lots of Omega 3 foods. wild salmon, eggs, walnuts. Low fat milk and extra lean beef also help a lot. Also, we learned that you can lose your melatonin, causing sleep problems. And you can lose your seratonin. Both can be replaced with pills. 3 mg melatonin or more (over the counter) 1/2 hour before bed may help you sleep better. Check with your doctor, but these things helped my husband enormously. Good luck!
Quote:
Originally Posted by ipanema1967
Hello,
I am new to this forum, 2 years ago I was diagnosed with severe sleep apnea. I was having neurological problems that at the time were attributed to lack of sleep. One by one doctors started to become concerned and the referrals to neurologists began. Then Movement disorder specialists. I was told it might be MSA. I eventually had a Datscan at Stanford that said I did not have Parkinsons. I was grateful but my symptoms remained. Over the following year every time I would see a doctor for other things they would shift focus and eventually after examination say...sir I know you are here for this or that but I feel I should tel you that I think you have Parkinsonsons and I want you to see another neurologist. It has been suggested that the Datscan be repeated but my insurance feels that another 15,000 dollar test is not justified. The last movement disorder specialist I was sent to said I have or exhibit SWEDDS which I understand to mean that I exhibit the symptoms of Parkinsons without having a decrease in Dopamine. I was also told that I have distonic tremors. I have found very little written on this and have been given very little advice as to treatment. If anyone on this forum has any experience on this matter I would be so grateful.
thank you in advance
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