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Old 02-13-2014, 02:42 PM
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
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Hi.
Nights r the worse for me! Like Syvonne, I have full body neuropathy. The only place I don't have it is the left side of my face. Not sure if the pain is worse at night or it is just that no one is around to keep my mind off it. I live everyday in a pain level of about 8-9. It's awful. I have had SFN for 6 1/2 years now.

I take cymbalta, tramadol and synthyroid. The cymbalta was what helped me with the burning pain. I also take krill oil, r lipoid acid, Coq10 and probiotic. I get IVIG which gives me some relief for about 7-10 days. I recently started Enbrel. So far not working. My sometimes I just feel like giving up on all the meds! I shutter to think what my pain my be like then.

For those who are using compound creams, what areas do you put it on?
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