Mina -

My best weapon was my iphone. I started recording every flare...every time my ptosis kicked in which is VERY remarkable I was sure to document. I recorded my slurred speech and my labored breathing.

This, for me, was the big turning point where my drs were like, "Oh, ok this is clear evidence" (still not sure why any dr would think we are dreaming up symptoms?!! Slurred speech/droopy lids are so sexy that of course I'd want to exaggerate that.... )

I also cut ties w any dr that seemed unimpressed and tossed them in the "useless dr bin".

Good luck.