My heart rate is almost always high now. When things got worse and started to spread...every time they measured my heart rate it was between 140-160 at rest. Really freaked out the ER docs when I went in once. Everything checked out okay and the consensus in the end what that is was high due to the pain. Which means I pretty much always have a HR over 100 and it's usually over 150 when I have a flare up.

I'm sorry you're not doing well. It's so frustrating to take the effort to go to the doctor or ER or whatever and you end up leaving no better off than if you had just stayed home...sometimes worse. Take care...and I hope you feel better soon.