Member
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Join Date: Dec 2006
Posts: 724
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Member
Join Date: Dec 2006
Posts: 724
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KerOpi, Ampyra sounds like a real wonder drug. I will have to look it up to see what it is, as I never heard of it. It's cruel that you could not get through to those who should get it for you--and the same thing in Erika's case. Are doctors becoming more and more overworked because of cut backs? I do not know.
We have not had specific cutbacks here, that I know of, but my great pcp leaving town meant I had to go through three pcp's to find one which is both close enough to home and suitable to a person with my ailments. The first one I went to (in the same office as the old pcp who left) didn't want to deal with my rare diseases, wanted to depend entirely on hematologist in another town....that won't work in an emergency, must have a local doctor willing to be semi-educated on the rare diseases. So I did a lot of driving, crying,
and persisting. Still don't know if the new pcp will be good but he has enough sense to know he needs to "look into" things that are "different" in my case.
I've had to live like this, in respect to medical care, for many years, so the changes in "unavailability" are not as obvious to me, possibly? But we hear all the awful stories about how cut backs are affecting care. Now I am seeing up close with Erika's and KerOpi's problems. Both situations sound like they are just not bearable.
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