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Old 02-14-2014, 11:36 PM
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Vrae Vrae is offline
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Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Smile ... because, because, because... because of the wonderful things he does. lol

Oh wow... I'm pretty excited! Combined these docs have some 45 Pt's with CRPS. And to think they've been just 45 minutes from me this whole time! In jest he said "your special, but around here, your not that special" (special meaning rare). I was like; cool, I don't want to be special.

So we're going to try a sympathetic block on 03/11/14. If I don't pass out from fear, perhaps this will go good. If it doesn't work (I've had CRPS for a long time now), then we'll move on to other things. I've never had a block before. Can you believe that? I have ran in fear before now. Please remember that all this started in my back, so to invite more of anything into that area is frightening as can be to me.

We discussed a SCS. That freaks me out too but I may have to try it. It's not fear of spread with this or the blocks, it's fear of anything to do with my spine and aggravating the CRPS. I think too that it's that I can't see what's going on, so my mind takes over.

Anyhow, to my surprise I liked him a LOT!! He is VERY knowledgeable, and seems ready to help. I think I'm on the right track for now. He said "Vrae, I can't fix you, but maybe we can get some of your function and life back". Yes! That would be FANTASTIC! Let's do that! My husband said that he was so happy that he thought he would cry while in the office. Poor guy. Gosh I do love my husband, and I'm a lucky girl in how much he loves me.

New drug for me: I told him Soma really wasn't doing much any more for the severe muscle spasms, so he has started me on Tizanidine 4mg 4xday. I have not tried or heard of it. He said if this doesn't work he had something else (I can't remember the name). I can't do Baclofen. It was a horrible experience for me.

I got some lidocaine patches, YEAH! I got these and the drug above filled tonight. I can put up to 3 patches at a time on, so I took the three, cut them in half, and have them stuck all over me lol ahhh. I wish I could just dip myself in it!


All in all it was a sweet day

Thank you for the kind thoughts and words, I really do appreciate it! Happy Valentines Day!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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