Porkette,
Thanks for the input.
How do you monitor yourself regarding seizures? Do you keep a journal for the doctor? What kind of seizure precautions do you keep for yourself?
What about your daily activities? Are you working?
How often do you have to take antiseizure medicarion?
I actually take Lyrica for symptomcontrol of neuropathy. My neuro doctor mentioned something about adding Dapakot, depending on test result. I have theese strange neurological events during the night only, and it always seems to be connected to sleep, because it wakes me up, and I otherways sleddp well. I have, as I mentioned severe small fiber neuropathy ( at least that is what the neuro told me) and I am thinking the two symptoms could be connected.
My brain MRI is showing a "deep cerebral cogenital angioma" it actually states" left posterior frontal lobe congenital venous angioma. I wonder if this is what is causing problems. I also have had severe left frontal headache lately, and "bilateral vertebral arteries impingement on the Medulla" almong other things. But the aneurysm has been delt with. It is only theese two things that I do not have any explanation for.
Regarding family history of epilepsy, I have a niece that has it ( but I do not know from what part of the family she might have inherited it)
And my son had very bad fever convulsions up until about 5 or 6 years of age. I had to give him Phenobarb liquid medisine daily.

I hope I will get some good help from theese 2 neurologists I am going to see. It is a neuromuscular neuro that specialize in neuropathy, and the other is the epileptologist and he is also the one that overseas the EEG monitoring.

It is my usual local neurovascular doctor that is sending me for the consults and ordering the tests. I do not realy know how good they are. I am trying to stay within my insurance network. My insurance is tied to a spesific healtcare network So we will se.

Porkette, it seems like we all have to try and think out the best ways of solving our helath problems.

Best wishes
Synnove