Quote:
Originally Posted by Myall
"Such things are rarely looked at together. Neuros rarely see people with PA/B12def and don't recognised it. Coeliac is rarely looked at by neuros though it can cause some crossover symptoms. Gastric imbalances get referred to a gastro specialist, and cognitive problems are rarely traced "
Agree totally. Medical practice is so compartmentalised.
I have gone gluten free since diagnosis 3 months ago. I have had gluten intolerance for years and it lead to leaky gut syndrome and low B12 levels. I recently started on high doses of B12 along with coconut oil. Have experienced big improvement in all aspects of my PD symptoms since doing this.
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So have you looked into the possibility that you have a condition other than PD? Or that you may have parkinsonism that is mediated by the other things you mention. Many people with B12 def are found to have considerable gastric overgrowth of one kind or another. I think what I am saying is that parkinsons signs and symptoms are exactly that a collection of things you are experiencing, that a name has been put to. Even medical sources agree with that, they know they do not have all the answers. But they also know that PD when doing its worst is something to be reckoned with. Glad you are finding relief, keep on asking the questions. Looking for answers is part of this journey.
