Quote:
Originally Posted by birchlake
Andrea,
How long have you had CRPS? My personal experience with it is that I had "both" cold and hot symptoms for about the first year. After that first year, it was almost exclusively hot (burning, with measurable temp. increase on the skin) symptoms. I've heard of a number of others that have had similar experiences.
This darn condition can morph and change, it certainly has many things that can be similar and common with many, but almost everyone has their own unique story and set of symptoms to deal with. For instance, I am one individual that has never had any "hypersensitivity", which is an extremely common symptom.
Where do you have CRPS and how are you treating it? What meds, have you had any physical therapy, etc.? Do you have a pain management doctor?
BTW, I'm from Minnesota too! I lived for 23 years in New Hope. Now I live in the Melrose area. Welcome to the forum!
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Thank you for the warm welcome!
The onset for me was in my left hand (thumb strain/sprain) and then swiftly moved up to my elbow. I'm now getting symptoms in my right hand and both feet up to the knees.
I've got therapy 2x week and I've been prescribed Amitripryline but I haven't started taking it yet as she warned me I'll need a full nights sleep. Our second vehicle is being repaired and I have to leave in the middle of each night to pick up my husband while we're a one car family so I'll start the Ami as soon as my midnight driving ends.
Yes, I noticed too that several of the symptoms I find the most worrisome aren't even the ones listed. For example I'm very shaky at times and nearly fall down. My regular doc, who referred me to Park Nicollet's CRPS specialist, ran a couple MRIs of my brain and they don't show signs of MS or whatever else can cause that. We're assuming this is also part of the CRPS. I only had the hypersensitivity for the first month or so but now I find that many things "irritate" my nervous system rather than cause pain. Example, when I thought I had a simple sprain/strain I took warm Epsom salt baths and it helped. Now the water doesn't cause pain, but my right hand starts to twitch and my left leg falls asleep every time (repeatable response). So I think the sensation of the water is irritating me. Paraffin dips hurt at first but don't "irritate" me so I use those instead of soaking in the tub. And the blasted ringing in my ears when things start to ramp up! Oy va voy it's like an ear migraine.
I also had a partial seizure last month. Strange and yet I haven't heard others report this. Maybe other people in this forum have experienced that.