I also have "floppy weak" muscles with my illness, like jello. How are your reflexes? what are they doing to further work you up at this point? Have you had a lumbar puncture, have you had the blood tests for stiff man syndrome? Do you have increased muscle mass, no change or decreased? (I know some disorders will give you increased muslce mass- i think stiff man does).

Hoping you find some good answers and treatment soon!