Quote:
Originally Posted by bny806
I also have "floppy weak" muscles with my illness, like jello. How are your reflexes? what are they doing to further work you up at this point? Have you had a lumbar puncture, have you had the blood tests for stiff man syndrome? Do you have increased muscle mass, no change or decreased? (I know some disorders will give you increased muslce mass- i think stiff man does).
Hoping you find some good answers and treatment soon!
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I have not had the lumbar puncture yet. I do not know if I had blood test for stiff muscle but they told me that they did every blood work that they could think of. I do not think that I have increase muscle mass unless I exercise. At times my muscles are fine but some days they get tight with me walking or using whatever muscle and that's when it gets painful and I can not lift my legs well. My neck hurts and tingles a lot so I think I have pinched nerve in it.