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Old 02-17-2014, 08:19 PM
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
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Quote:
Originally Posted by Synnove View Post
Hopeful,
I use compound cream, Gabapentin 5 %. Lidocaine, 10 % and Compket 10 %.-- I put it spearingly on top of each foot, just over the joint, and a little on each wrists.-- I can use it 3 times daily, but usually I use it twice daily. I try to use it between doses of Lyrica, because the cream can be powerful.

Hopeful, is your underlying condition Arthritis? Mine is Vasculitis and Arthritis. The rheumatologist has me on Full dose of Methatrexate. The doc had switched me to Cellcept for a while, but the jointpain became worse, so I am back on Methatrexate.
I hear you have received IVGG? Has this been helping for you?
I am getting so desperate for solution. My doc mentioned to start Rituxan, but so far I am waiting to have some more tests like right now, a temporal artery biopsy.
Good luck to you.
Hi,
I actually have not been diagnosed with arthritis. I see a rheumo because one of the diagnoses i was given was sjogren's. He was trying to get rictus in for me and the insurance company insisted I try Enbrel first. So far it is not working and I get huge red hot reactions at the injection site every time. I don't think I am going to continue more than a week or two if it doesn't start helping.

I do get IVIG. Yes I do think that it helps somewhat. Especially with the muscle weakness that is gradually getting worse and worse. It also lowers the pain for about a week.

Trust me I understand your desperation. I know my rheumo wants to try for the rituxin next but I'm afraid of it. I'll have to really think about it.

Check with your doctor about IVIG.
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