Quote:
Originally Posted by AZ-Di
Dear Kevscar,
Thanks once again for providing this, it is so very well said.
I have wanted for months to send this to loved ones, especially to my
grown kids.
I'm afraid they'd say or think "jeez, you didn't need to "go off" like that.
Since I've not been working they have an attitude of how nice it must be
to be acting like I'm retired early (not exact words).
In different conversations, one of them points out hypothetical jobs I
could do, how she has Crohn's disease (and works). I so much want to point out there's specific medicine to keep that in remission.
RSD does not have one.
Maybe I just don't have the nerve (bad pun) to speak up.
Any comments??
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Hey Di! I think you need to speak up and give this to those loved ones. I gave some family members and friends something similar to this and it helped. Sometimes when they read something like this it puts it into a little different perspective. What Kevscar posted is does not read like you are "going off", it is polite but matter-of-fact. There is no way they will ever understand fully, but this could help get them closer to understanding and showing you more support and empathy. Also give them a copy of the McGill Pain Index (my husband said that is a real eye opener).
And oh, I hate when someone asks me "so, are you enjoying your retirement?" REALLY??? I am only 47, I am not retired, I am disabled...I cannot work! This is not my choice!