Hey - I just posted this reply to you on the other thread...

Hey Di! I think you need to speak up and give this to those loved ones. I gave some family members and friends something similar to this and it helped. Sometimes when they read something like this it puts it into a little different perspective. What Kevscar posted is does not read like you are "going off", it is polite but matter-of-fact. There is no way they will ever understand fully, but this could help get them closer to understanding and showing you more support and empathy. Also give them a copy of the McGill Pain Index (my husband said that is a real eye opener).

And oh, I hate when someone asks me "so, are you enjoying your retirement?" REALLY??? I am only 47, I am not retired, I am disabled...I cannot work! This is not my choice!