I hope so too. I spoke with the nurse at the pulmonary office and she's going to call me back with the doctor's recommendation. I emailed my neurologist--hopefully I hear back from her about either this situation or the consult with the sleep neuro.

The pulmonary doctor is good, but most of his practice is apnea and I don't know how much he's taking neuro-muscular into account. We had a disagreement about what level of sleepiness is acceptable and I realized later that he thought sleepiness was left over drowsiness from BiPAP therapy, whereas to me, it was, "I can't open my eyes without the medicine." I didn't verbalize this very well, though.

Unfortunately I can't find any local neurologist who specialize in sleep, only a few that I know didn't treat sleep problems as of a few years ago and are really MS doctors or generalists.

EDIT: Another possibly related piece to the puzzle is that my BiPAP numbers have been almost off the chart since switching masks a few days ago. The new mask is much more comfortable, but I wonder if a few nights of high leaks and apneas contributed to today. I'm going to try to shave my beard and try to make the new mask work, as every other mask pulls on the back of my neck, hurts my ears, or leaks all around on high pressure. Strange thing is I don't feel this leaking at all, but the computer doesn't lie. Its also the only mask I have since my old one needed replacement parts.