Thanks Vrae, yes we must. In fact I'm thinking of crafting a letter about 3 major issues. Firstly their statement that they tell all their patients, including those with a cardiac condition, to wait at least 15 mins into any chest pain before calling 999. Secondly, that not one of their staff knows much about CRPS and doesn't seem interested. And thirdly, that they seem to have a judgemental and primitive attitude to patients in severe pain, together with limited knowledge of narcotics. Steam would be coming out of my ears if I had the energy.

So all gone a bit haywire again. Took oramorph last night sort of ready for sleep. Nothing happening on pain front, except that it's building up, but did fall asleep. Woke few hours later, loads of pain, so it hadnt worked. Convo re not keeping levels up probably means have to catch back up. Read leaflet again, yes needed to keep up constant level, not binge and bust like I did. Ok. Took another dose. Waited. Nothing. Took an extra 2.5ml. Slept again. Woke couple of hours later this morning, pain still there. Seriously hacked off. Thought I'd got some control, now seems I have none.

Ay advice? Running out of stamina, energy, patience and sanity here!

Hugs to all folk, and thank you. Keep sending me those good vibes, I need them...

Bram