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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I received a call from the pulmonologist office. He read my sleep study results and changed the test to a BIPAP. I am relieved, since I am so much worse on exhale. My lungs even crackle on exhale and I do not have any congestion. I will complete the sleep study tomorrow night and my IVIG starts on Sunday. I am going to ask for the BIPAP with humidifier and nasal cannullas. I can't wait. I feel so weak and so tired and I broke out in a rash on my face last night like a lupus rash. And to make matters worse my teenage daughter is being very bratty - not helping shovel snow, won't help me with the grocery shopping. I feel like I should go out on disability and cannot work anymore. I hope IVIG perks me up.
Sorry to vent
Thanks
kathie
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