Thread: SCS leads
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Old 02-19-2014, 09:17 PM
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PamelaJune PamelaJune is offline
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PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Lightbulb Boston rep

Hi Julz, no I haven't met the boston rep! my current SCS is a Nevro Senza HF, it's high frequency and you feel no vibration whatsoever. My trial was in November and in December the permanent was placed. They had difficulty and the op took 3 hours of pushing and pulling and only 1 lead placed as couldn't get the other one in. I'm supposed to be referred to Holthouse at some stage for a paddle implant. Nevro don't do paddles so it's a Boston that they are talking about implanting and my Nevro rep will work in conjunction with the Boston rep to manage it.
However in the meantime, my PM is doing disc injections to determine if I need another fusion done on L2/3 vertebrae above where they did the double fusion L4/4 S1 last year in June. And, as I haven't heard from my Nevro rep about the paddle I just don't know if they themselves know where they are at with it. My PM rang her while I was there and left a msg for her to call him back, I texted her and have heard nothing back. I know she is busy as two other reps finished but crikes I had the implant done and do still have one lead in and I'm sure they are supposed to keep in contact with me...
Re the lead, my battery is in my right butt cheek and the lead is in under the skin leading from the battery up to Vertebrae T9. If you go onto YouTube you can view a small 4 min demo that explains how it's done. Implantation of Spinal Cord Stimulator by Joe Ordia, MD - YouTube

www.youtube.com/watch?v=u4gQ-JpYyxs

Have a watch of it and it explains how it's done and also shows you. It's not to graphic, but be prepared for the cheek clenching when he is pushing through the flesh to connect the lead to the battery...
As you had the Boston, can I ask what model you had and was it percutaneous leads or paddle. Also could you feel the vibration. I really don't think I will be able to tolerate vibration so it's important for me to know before they go ahead with a paddle implant as I won't be able to trial it.
I think at Fremantle pain clinic they team you up with a pain management specialist and a psychologist. It will be easier with them in the same premise, my Pm is in South Perth and my Psych is at Hollywood hospital, although I haven't seen her since June last year. Why they feel the need to go back into childhood past is beyond me, it's pain we we dealing with...
So what is Holthouse like? my NS is Malone and he is fantastic! best surgeon I have had in years and he takes the time to explain to you and your partner what he is doing and what's going on. He also has a great old fashioned physio team he works with and they believe in small muscular physical development to provide support rather than relying on braces etc.
With the everything possible that could go wrong go wrong, I totally get you, I'm in the same boat and very nervous about what more can go next time. I've had a number of stuff ups with surgeries and am definitely not up to facing another merry go round of hospital stints.
I haven't heard of Paul Taylor, hope he does well by you
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Hana (02-19-2014)