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Old 02-19-2014, 11:58 PM
nemsmom nemsmom is offline
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
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Quote:
Originally Posted by jusf View Post
Thanks nemsmom :-)

I've mentioned the idea of periodic paralysis to my gp - she's referred me back to neuro as these episodes are just becoming more and more frequent (roughly every 3rd day at the moment) and said she would mention PP in the letter. I'm waiting for an appointment.

So far this neurologist has insisted he is correct in his diagnosis of chronic migraine syndrome - I'm hoping he's prepared to at least consider other things as I've tried his drug suggestions and continued to get worse :-(

I've tried, over the last week or two, having much less carbs and sugar, but the attacks have been as frequent. I'll try your suggestion of eating as I normally would and see if there's a pattern or trigger I can pick up.


Thanks for your help :-) I'll keep you posted.
Changing my diet was never enough to help stop the attacks. But there are a lot of meds out there and it's a matter of finding the one that works and changing your diet and routine to help.

Cutting out carbs won't help if you have HyperKalemic Periodic Paralysis instead of HypoKalemic Periodic Paralysis. When you change things you could also try increasing or decreasing your potassium intake.

If you aren't getting anywhere with this neurologist you can and should ask for a second opinion.

Thanks for keeping me up to date!
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"Thanks for this!" says:
jusf (02-20-2014)