well, if it is MS, there are so many great treatments out there at least! There has been a lot of research in that area - though more is obviously needed, and better treatments and a cure .. but I have met many people who are living amazing lives without any disability after having MS for 20 years! HOpefully you will find answers soon, or they will at least try some treatments! Prayers going out to you - limbo land is soooo stressful (I've been in it for 3 years)!!