Thread: MRI not clear
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Old 02-20-2014, 05:30 PM
gr8ful gr8ful is offline
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Join Date: Feb 2013
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10 yr Member
gr8ful gr8ful is offline
Junior Member
 
Join Date: Feb 2013
Posts: 81
10 yr Member
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Heather, There's been a fair amount of discussion on this topic. Some people hope for a thymectomy because it offers a chance for remission, improvement or elimination of all MG symptoms (for a small percent). In many cases, the MG symptoms lessen or disappear a few months after a thymectomy.

As far as the question of malignant vs benign, it may not be that important. I think thymus tumors typically start out as benign but can change over time to become a malignancy. As long as the tumor is confined to the thymus itself, it's a low risk event and the cure rates are very, very high whether malignant or not. Several types of cancer can unfold this way. An example is 'pre-cancerous' polyp that can develop into colon cancer. If it is removed, it never develops into cancer, but if it goes undetected, it can be a big problem.

It's possible your MG symptoms served as a warning to catch a problem with your thymus early and before it can ever become malignant. I believe this often is the case. If so, they will likely offer a thymectomy and you will have a good chance of reducing MG symptoms and a very, very good chance of never having to worry about a future malignancy. Thymus tumors, when detected early, are reliably cured.

If they do offer a thymectomy, you should ask about different options to perform the procedure. Several people on this forum have said good things about a minimally invasive method called VATS where the procedure is done with a robot through small incisions in the chest. A thymectomy is major surgery but the VATS method offers a much faster recovery.

I wish you didn't have to worry about this during your pregnancy. It doesn't seem fair at all. Wishing you strength to make the best of it. Keep us posted.

Last edited by gr8ful; 02-20-2014 at 06:11 PM. Reason: grammar and add
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Heather33 (02-20-2014), Panorama (02-20-2014), southblues (02-20-2014)