Thanks guys, I'm looking at the crps forum (rsd), and I do think that's what's happening to me. The slightest movement of my hip, and I mean SLIGHT, can cause excruciating pain. It's spreading to the other hip. The pain is total, my entire leg, and deeper than anything I've experienced before. The aching in my butt is ceaseless now, even lying in bed. It's not awful; it's the pain with movements that's awful. If that became constant and predictable, I'd want to be in a total body cast, that's how bad it feels. It's way out of proportion to the size of the movements or stress. Also, just slight pressure causes pain out of proportion.

And, one more thing, as if that weren't enough: I'm getting myotonic jerking movements. When I was first put on oxycontin after the surgery I developed myoclonus--that's an involuntary movement of large muscle groups, and a startle reaction to sounds which is huge, could cause my whole body to jack-knife. My doctor stopped the oxy and put me on Klonopin, and it went away. But it's come back again, and I'm not taking oxycontin anymore. When I lie in bed or relax there are jerking movements, slow, almost rhythmical, of an entire, leg, arm, shoulder, or head. It's rather disconcerting.

So I'm alarmed. I feel like I've got so many problems going on that finding the right doctors and treatment is going to be even more overwhelming than it has been.

For what it's worth, CRPS or RSD, is auto-immune. I have the genetic marker for it, so I was worried going into the surgery. When you get tested for gluten markers, HLA class I antigens is the test, one of the genes they test for that is a "lesser" gene for gluten (Im not sure this is really true, but Dr Fine of gluten-testing labs says so) is also the gene for RSD.

So it's back to auto immune. One thing that worries me, as if there aren't a million, is that fusing the back depends on having inflammation and not suppressing it. Getting rid of Regional Pain syndrome seems to depend upon decreasing iflammation.

I have a lot more reading to do, and I feel less and less up to it.

Overwhelmed, and a bit prone to feeling near hysterical, no, obsessed, over figuring it out.

I need Dove Bars more than information just now.