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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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I had mg for about 10 years before the dv kicked in - Had a thymectomy about 5 years after diagnosis - didn't see a lot of improvement (other than removing a malignant tumor in my thymus!), but I'm quite a bit older than you (64),
I have dv full time and finally accepted it and had one the of the lenses in my glasses ground so that it is opaque but I still have peripheral vision on that side - it's better than wearing a patch (which I did for about a year).
Hopefully, the ivig will help and with the mestinon, you can get rid of the dv. Are you taking any immune suppressants (cellcept or Imuran?) You might talk to your doc about that. The other thing is prednisone - I know no one wants to take it due to the side affects, but I can help most people with the dv.
Good luck and let us know how it goes.
Juanita
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