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Old 02-24-2014, 08:42 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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A lot of your symptoms fall into the classical small fiber neuropathy category, which does not always show up on EMG/NCS. Could you persuade you doctor to do a skin biopsy? It is the standard test for SFN today. Even with that, some people do not test positive. This is a frustrating disease, hard to describe accurately and extremely difficult to deal with without a clear diagnosis. A number of people on the forum currently are struggling with that ambiguity.

We share a lot of symptoms, at least that is what I experienced when the neuropathic symptoms really started setting in. I have a hereditary neuropathy and had neuromuscular symptoms from childhood, numbness did not set in until my 30's. I am 52 and have deteriorated a lot in the past five years.

We cannot tell you to quit your job. I think that you will know when it is time. Many of us cannot stand for more than a few minutes without severe pain setting in, sometimes lasting for days. If you could begin the transition to a different kind of work that might be wise, as you may progress to this point.

Rapid onset and progression is usually due to a toxic neuropathy, were you taking any statins or antibiotics around the time of the onset? Both are known triggers for neuropathy.

Are your hands affected at all?
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