Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
Hey Susanne :)
Quote:
Originally Posted by Susanne C.
A lot of your symptoms fall into the classical small fiber neuropathy category, which does not always show up on EMG/NCS. Could you persuade you doctor to do a skin biopsy? It is the standard test for SFN today. Even with that, some people do not test positive. This is a frustrating disease, hard to describe accurately and extremely difficult to deal with without a clear diagnosis. A number of people on the forum currently are struggling with that ambiguity.
We share a lot of symptoms, at least that is what I experienced when the neuropathic symptoms really started setting in. I have a hereditary neuropathy and had neuromuscular symptoms from childhood, numbness did not set in until my 30's. I am 52 and have deteriorated a lot in the past five years.
We cannot tell you to quit your job. I think that you will know when it is time. Many of us cannot stand for more than a few minutes without severe pain setting in, sometimes lasting for days. If you could begin the transition to a different kind of work that might be wise, as you may progress to this point.
Rapid onset and progression is usually due to a toxic neuropathy, were you taking any statins or antibiotics around the time of the onset? Both are known triggers for neuropathy.
Are your hands affected at all?
|
Thanks for saying it much better than I could 
Toxic neuropathy....my SFN started suddenly one month after I finished 6 rounds of chemo (taxol/carbo). My A1C also spiked to 8.7 during the chemo.
Debi from Georgia
|