The fact that you've been going downhill sounds like MG (fatigable), but that doesn't mean that it's all MG. If it's bad enough that you can't work, then it's bad enough to SEE a doctor!

Do you have a good internist? Someone needs to see if you are anemic, if your heart is okay (do an ECG, etc.), test your strength, check your O2 saturation, etc.

We can all guess at what's going on but that is not a substitute for a doctor checking you out!

Yes, the tingling could be a lack of oxygen but it can also be a circulatory or nerve issue. Or a hydration/electrolyte issue. Or something else!

Has anyone checked your orthostatic blood pressure/pulse? It's when you lie down, take BP/pulse and then stand up and retake it. Some people with those symptoms have Postural Orthostatic Tachycardia Syndrome (POTS).

Do you have an oximeter? Your doctor might be able to prescribe one.

Please just get in to see a doctor. If you feel very weak, short of breath, etc., go to the ER. You know the drill!

Are you one of those people who has to know it before they know it? Let the doctor figure it out. What's going on might not be MG or might be exacerbating your MG. It hardly matters, because you need help!


Annie

Okay, I just read your reply on the "psychiatric" post. Quit beating up on yourself!

Whatever a doctor does or doesn't do is on THEM. It isn't about you. Neurologists do this crap to patients all over the world. Yes, there are great ones, like you finally found, but you are not responsible for that former one's inability to help you.

And sometimes antibodies are so busy attacking your tissues that they don't come out to play for that antibody test! Sometimes they don't show up until later on. Antibodies fluctuate. They've also found three MG antibodies so far and that tells me that there are probably more of them! The neuromuscular junction is complex and there are a lot of places that can be attacked (by different antibodies).

Bottom line? Try not to let other people be the steerer of your own life! It's your life, it's your psyche. No one has the right to put you down, unless you let them. If they do, the problem is theirs.

Now go get yourself some healthcare!!!