Limpy - I am also plaqued by GI issues since this all started.. I feel like at times i have malabsorption. I do have a sibling with Crohns, but they don't think i have that - they are pointing more likely to celiac.. i have been strictly gluten free for 3 years now... though i do test it every few months and regret it... It's hard to have that on top of everything else! Do you get starving frequently??? I feel like I am going to starve to death when my GI symptoms flare! I had horrible gastroparesis and hyperemesis with pregnancy - they coudln't figure out what the problem was... ick.. lots of vomiting then!
I'm due for IVIG In three days and look like my face is almost paralyzed- my eyelids are in my vision and I have a snarl for a smile.... fun times!